BID SURVIVOR - YOUNG, SICK AND Hungry FOR LIFE
You are not alone - diagnosis CED what now?
Hey, I am Michelle and a 22 year old German sharing my experience living with ulcerative colitis for 13 years now.
Why this is the content you were looking for?
Do you suffer from IBD - an inflammatory bowel disease and are looking for tips or a refuge where you can be understood? On the one hand, Crohn's disease / ulcerative colitis is unfortunately still a taboo subject in society, on the other hand, most people do not know what to do with the terms. When you try to educate friends or acquaintances, you often experience dislike or ridicule. You feel misunderstood and alone. But you are not! I am here to help you make peace with yourself and your body and regain your life.
What is special about me?
Of course I don't know it all , but my story starts very early, in my opinion too early, but when does fate ask for your opinion, huh?. I learned that the hard way. I was diagnosed with ulcerative colitis when I was 9 years old. Today I am 22 years old and have a lot of experience for my age, which I would now like to spare others, especially newbies. I was close to death and was already in art. Coma. I've been living with an ileostomy for a year now, but you can find more details in my story. I am also a nurse and I have a good medical background that I like to share.
What will you find here?
You just got the diagnosis and don't know what to do next, or have you been living with your IBD for a while and looking for tips? No matter which group of people you belong to, here you will find tips on nutrition, lifestyle, etc. Especially with regard to the stoma, there are usually only reports of older people who receive it as part of the diagnosis of colorectal cancer at around 50 years of age. But how do you deal with it when you're young? How do you explain it to your friends and relatives? What can you eat ? I got you !
When friends turn away .....
Recently a young man came to me and was depressed and disappointed because since his diagnosis a few months ago, many "friends" have turned away thinking that his illness is contagious. Others mocked him and made fun of his diarrhea ..... People he thought he could rely on. This reminded me of my time after my diagnose, but now I'm no longer upset when people turn away. I do not waste any unnecessary strength and time trying to maintain friendships, because in the end they are not permanent.
Dating with IBD
- I have IBD , do you still think i am hot?
Isn't dating complicated anyway in todays society? Getting to know someone in a simple way is almost impssible these days and this refers to people without any visible or invisible disability Having an invisible or even visible limitation doesn't make the whole thing easier. What is "normal"?
Attention - what to eat during a flare- up!
If you are now expecting to read the 10 miracle cures, I have to disappoint you. There is no general nutrition guide in the literature. Get rid of black or white mentality. However, one thing is sure: in acute episodes, the intestine needs to be relieved by low-fiber, low-fat and non irritant food, but it is still important to provide the body with sufficient amounts of minerals, vitamins, energy, protein and fluids during this period !
What to eat during remission?
The causes of a flair - ups or the disease, have not been precisely determined yet. In addition to many factors such as psyche, medication, climate, genes, nutrition is also seen in close connection with relapses. Medicine does not declare a clear diet, only a balanced, varied, high-fiber diet is recommended, but this leaves a lot of space for speculation and that's a good thing! Although there are recommendations as to which foods protect the intestines and keep ...
Coffeetalk: Know your worth !
Louis Vuitton does not go on sale, Fenty does not go on sale, Prada does not go on sale .. why? Because it costs as much as it costs! Their products are not for average people, they are luxury items. It is the same with self-esteem. It's not about wearing Gucci bags & Co, no I don't mean the value of what you are wearing, but your intrinsic value.
10 things IBD taught me!
1. Be patient
Doesn't everyone has to learn that at some point? Yes and no! All life long we are waiting for sth.. Waiting at the cash register, waiting for the big love, waiting for an exam, waiting, waiting, waiting. Right now during corona , I hear many young people complaining about not being they able to meet or go to clubs ..... are you serious?
Lonely together?! - here you will find everything about living with the disease. Realtalk - no taboos for more mindfulness and understanding of chronic inflammatory diseases. How do I teach my family and friends? What is BID? What helps during inflammations? How can I prevent it from happening? How does the illness limit me? Here you will find tips, but not only those affected, also relatives and friends can find help here ........
